a couple who were told their severely disabled baby may die within hours of being born are celebrating her first birthday .
when sonia morales was pregnant , her daughter angela was diagnosed with anencephaly , a birth defect in which babies are born without parts of their brain and skull .
they were prepared that they may lose angela from the moment she was born .
` when we went to the hospital , i thought i was going to be saying hello and goodbye on the same day .